When my son was 18 months old we were introduced to VCFS aka 22Q.dil.11. Now that was a big shock!!!! He was born with a soft cleft palate that was repaired at 6 months and a heart murmur was detected. Never would I have thought that there would be anything else to come up and bite us in the bum. Ouch!!! What the heck is VCFS?????
He is now eight and life had been an unexpected adventure. These are some of the highlights
Orr look at him receiving an award when he was in kindergarten
Oh look, this is a painting that I did in response to being thrust into the VCFS journey
Awww look at him hugging the washing machine.
Such a sweet photo of my son and his Grandma behind him….notice how he is reaching his hand behind him so that he can have Grandma hold his hand.
I just love this picture
Us in the paper creating awareness
Looking quite dashing in his specs
Here he is picking up all of the cigarette butts from the ground. It became an obsession.
Getting rather excited with the fireworks set up!!!
Too exciting…a train trip!!!!
Arh, the happiness……army clothes, a toy grenade and a trip on the elevator.
Life is good for a child with Q22
I have written a lot about VCFS and if you would like to read more of our journey here is the link